[image: Inline image 1]NISO Receives Two Grants To Undertake the Creation
of a Framework on Data and Privacy

Baltimore, MD - January 7, 2016 - The National Information Standards
Organization (NISO) has received two grants to develop a consensus
framework for mitigating and managing the privacy risks related to the
collection, preservation, sharing, use, and re-use of research data sets.
The grants from both the Andrew W. Mellon Foundation
<> and the Alfred P. Sloan Foundation
<> will further advance NISO's existing privacy
initiatives on user privacy in library, publisher, and software supplier
systems, details of which were published in December 2015.

The 22-month project funded by the Mellon Foundation is called "Development
of a Consensus Framework for Mitigating the Privacy Risks Related to the
Collection, Sharing, and Use of Research Data Sets." A proposed joint
NISO-Research Data Alliance (RDA) working group will develop the framework
and associated metadata, use cases, and implementation support materials.
Todd Carpenter, NISO Executive Director, will serve as the overall project
director and co-chair of the working group. The working group will also be
co-chaired by Bonnie Tijerina, a Researcher at the Data & Society Research
Institute and founder of the Electronic Resources & Libraries conference.
The Working Group Case Statement is currently open and available for
comment on the RDA website.

Work on privacy issues surrounding data sets is related to and will build
upon ongoing initiatives at NISO and RDA. The framework will fill a need in
the international science, social science, and humanities communities,
which often work with human subject research data but lack concrete
guidelines as to how to safeguard those data as they are shared, used, and
processed. Institutional repositories have too often dealt with the
question of privacy in data sets by exclusion rather than management. Not
only do repository managers risk incurring significant financial penalties
in this process, they also create avoidable barriers to data sharing and

In order to explore the issues and provide needed guidance, global leaders
in the areas of data science, repositories, privacy, publishing, and
technology will be invited to participate in the working group, which will
convene both virtually and in person at RDA plenary meetings over the next
18 months in Tokyo, Japan; Denver, CO; and Barcelona, Spain.

Additional efforts related to this working group and the initiative will be
supported by a grant from the Alfred P. Sloan Foundation called "Support
for public outreach, engagement, and promotion of the joint NISO-RDA
Working Group on the Privacy Implications of Research Data." Following the
development of the framework and data protection guidelines for the
international scholarly community, it will be important to advance an
understanding by data creators, managers, and consumers of the privacy
implications of exposing, using, and preserving research data. A full
understanding of the risks will support better adoption of the framework,
so that a key component of this project will be a public symposium where
stakeholders will discuss important practical aspects of privacy and
research data.

The symposium will be held concurrently with International Data Week 2016,
September 11-17, 2016. This public symposium will bring together members of
the Research Data Alliance, the ICSU World Data Systems, International
CODATA, and the SciDataCon conference for a week of associated meetings in
Denver, CO. Free live virtual participation is planned for those unable to
attend in person, and a permanent video archive of the event will also be
posted on the Internet for public viewing. Promotion of the work will
continue after the symposium, with the Sloan Foundation also supporting the
creation of related articles in NISO's Information Standards Quarterly and
planned additional news reports documenting the event. Subsequent working
group efforts will focus on wider adoption of the framework.

Public comments on the draft Case Statement on the RDA webpage are welcome.
People interested in participating in this project are encouraged to either
contact NISO's Associate Director, Nettie Lagace <[log in to unmask]>, or
register with the Research Data Alliance and join the group on the RDA
More information about the project is posted on the NISO website

*About the National Information Standards Organization (NISO)*

NISO fosters the development and maintenance of standards that facilitate
the creation, persistent management, and effective interchange of
information so that it can be trusted for use in research and learning. To
fulfill this mission, NISO engages libraries, publishers, information
aggregators, and other organizations that support learning, research, and
scholarship through the creation, organization, management, and curation of
knowledge. NISO works with intersecting communities of interest and across
the entire lifecycle of an information standard. NISO is a not-for-profit
association accredited by the American National Standards Institute (ANSI).
More information about NISO is available on its website:

For More Information, Contact: Nettie Lagace
Phone: 301-654-2512
Email Nettie Lagace


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