Does your IRB process require you to get NIH certification?
http://phrp.nihtraining.com/users/login.php

Based on what I read in the NIH training, I haven't been worrying at all
about how or where I store my data.  I didn't work with any high-risk
populations, my data is all anonymous, and even if someone did manage to
figure out whose data it was it still poses no risk to the tester's
life/happiness/reputation.  My IRB proposal didn't include any plan for
data security, and they approved it without asking for one.  I didn't think
to ask about putting data in the institutional repository, but I have
approval to use my data for articles and/or conference presentations.  Both
of those are things I would put in a repository, so I would feel ok about
putting my data in the repository, too.

Emily


Emily Mitchell
Librarian / Webmaster
214 Penfield Library
SUNY Oswego
Oswego, NY 13126
Phone: 315-312-3540


On Thu, Mar 20, 2014 at 4:53 PM, Hicks, William <[log in to unmask]>wrote:

> I should probably clarify a bit. Yes, Iąll code internet survey response
> data and observational into Study Code IDs, etc. Iąm sorta curious on the
> storage end of things, like keeping your data locked in cabinets, what (if
> anything) you note about storing data in your institutional
> repository/digital libraries, etc. I see lots of public spaces on peopleąs
> websites that link to their study results, but Iąm just a bit more curious
> about the administrative/organizational side of things. What do you łhave˛
> to do, and how are you complying?
>
> Like you Emily, Iąm not real concerned about ever using names after the
> fact.
>
> William Hicks
>
>
> Digital Libraries: User Interfaces
> University of North Texas
> 1155 Union Circle #305190
> Denton, TX 76203-5017
>
> email: [log in to unmask]  | phone: 940.891.6703 | fax: 940.369.8882 |
> web: http://www.library.unt.edu
>
>
>
>
> On 3/20/14, 3:22 PM, "emily mitchell" <[log in to unmask]> wrote:
>
> >William,
> >
> >I just went through IRB in January for the usability studies I'm doing
> >this
> >semester.  I couldn't think of any reason I would ever want to be able to
> >go back and associate names with results of usability studies, so I took
> >the simple route: I don't retain people's names anywhere other than on the
> >informed consent forms.
> >
> >When I was doing surveys, each set of answers got assigned a unique ID so
> >that I could keep track of which answers were from the same person.  That
> >ID is not associated with the person's name anywhere, and I also haven't
> >been collecting demographic information.
> >
> >This might be more simplistic than what you're going for, but it's working
> >out really well for me.
> >
> >Emily
> >
> >
> >Emily Mitchell
> >Librarian / Webmaster
> >214 Penfield Library
> >SUNY Oswego
> >Oswego, NY 13126
> >Phone: 315-312-3540
> >
> >
> >On Thu, Mar 20, 2014 at 4:05 PM, Hicks, William
> ><[log in to unmask]>wrote:
> >
> >> Anybody have advice on maintaing records related to usability studies,
> >> interviews, etc. with regards to records retention/IRB policies in your
> >> university settings?  I'm putting together an IRB application at my
> >> institution and am curious what any of you might have done for this
> >>sort of
> >> stuff. Particularly how you might have coded/anonymized and stored
> >>results
> >> from interviews to maintain confidentiality.
> >>
> >> I'll have the sort of standard informed consent, and a
> >> photographic/audio/video release form for an observational study you
> >>might
> >> expect, but I'd also like to put as much raw data into our data
> >>repository
> >> afterwards as I can too so there are a number of complicated things
> >>going
> >> on at once.
> >>
> >> Any thoughts would be appreciated
> >>
> >>
> >> William Hicks
> >>
> >> Digital Libraries: User Interfaces
> >>
> >> email: [log in to unmask]
> >>
>